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Financial Assistance Having a family member with an illness or condition like epilepsy is physically, emotionally, and financially draining. Besides regular visits to neurologists, there are expensive tests (EEG, MRI), and expensive medicines. Our daughter's monthly Lamictal dose alone was over $800.
Even though we've been very fortunate to primarily work from home, (see Our Story) it has been hard at times to make ends meet. Listed below are three main catagories of assistance that may help you:
Charities for Epileptics
Each of these organizations offers some type of assitance. They have differing standards and proceedures for applying for help. Please visit them for more information.
Both CURE and PACE are very large charitable organizations that are not Epilepsy specific. Contact your local Chamber of Commerce or Business organizations to find a local branch. Sometimes local businesses have additional charities that they will sponsor for people in their community needing assistance.
Travel Assistance
Many airlines run programs where their frequent flyers will donate mileage for the benefit of children that need to travel for healthcare. Both American Airlines and Northwest gave us free tickets from Colorado to Baltimore, Maryland so that we could participate in the Johns Hopkins study.
Getting this assistance requires some organization and diligence in finding and applying for the benefits. Of extreme value to us was a helpful and sympathetic nurse in the public health department in our county.
Johns Hopkins Studies
If you or your loved one qualifies for one of the current Johns Hopkins studies, all the medical expenses related to the study are free. Visits with Dr. Kossoff, consultation with the dietician, lab work analysis, etc. are all part of the study. Visit here to see if you qualify to participate.
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